Sensitive and Accurate: Communication and language in Perinatal Hospice Care
Five minute video presented by Perinatal Hospice on talking with families facing life-limiting or terminal diagnosis. Provides ideas on verbal and non-verbal communication techniques to use when talking with the parents
Caring for Parents: Psychological Support in Perinatal Hospice Care
Three minute video presented by Perinatal Hospice on the importance of providing psychological support for families facing a life-limiting or terminal diagnosis
Below is a list of websites that offer bereavement materials, etc.
These organizations do not necessarily represent the The Haven Network’s views; they are simply presented as available resources concerning perinatal death and bereavement as well as other grief issues.
New Leaf Resources
As the leading professional on aftercare services, New Leaf Resources™, a division of Sherry Williams Enterprises, consults with funeral directors, healthcare organizations, churches and non-profit organizations to help them develop and manage aftercare for the bereaved and caregiver support programs.
Bereavement – A Magazine of Hope and Healing
A support group in print and complete grief resource center.
Carefully selected resources related to loss and grief.
A Place to Remember
Uplifting support materials and resources for those who have been touched by a crisis in pregnancy or the death of a baby.
The Centering Corporation
The Centering Corporation is a non-profit organization dedicated to providing education and resources for the bereaved.
The Grief Watch site was created to provide you with bereavement resources, memorial products and links that can help you through your personal loss. It also serves as an excellent educational tool for all who travel down the road of grief.
Threads of Love
Threads of Love is a sewing ministry meeting the needs of tiny premature infants and newborns who die due to stillbirth, miscarriage or infant death. The ministry is about healing and binding hearts together of parents at a time of uncertainty about their baby’s health or when they lose an infant.
Alexandra’s House is a charitable perinatal-infant hospice house and refuge for abandoned or neglected babies. Our first focus is to provide spiritual, grief and practical support to families pregnant with terminally ill babies and for families whose babies are diagnosed later with a terminal illness.
638 W. 39th Terrace
Kansas City, MO 64111
Patti Lewis, Director
(816) 931-ALEX (2539)
The mission of Share Pregnancy and Infant Loss Support, Inc. is to serve those whose lives are touched by the tragic death of a baby through early pregnancy loss, stillbirth, or in the first few months of life.
All information packets, correspondence, and support are free of charge for bereaved parents.
The Compassionate Friends
The mission of The Compassionate Friends is to assist families toward the positive resolution of grief following the death of a child of any age and to provide information to help others be supportive.
Perinatal Palliative Care Alliance of Northern Illinois & Southern Wisconsin
PPCA is a collaborative group of medical professionals and birth workers in the field of perinatal palliative care in Rockford, IL and the surrounding areas. Professionals from the area can attend meetings 3 times a year. For more information, contact The Haven Network 815.962.1512.
The Pregnancy Loss and Infant Death Alliance
The Pregnancy Loss and Infant Death Alliance, or PLIDA, is a nationwide, collective community of parents and health care professionals. We work together to ensure that all families experiencing the death of a baby during pregnancy, birth, or infancy will receive comprehensive and compassionate care from diagnosis through the reproductive years.
Psychosocial Outreach: Helping the Family Facing Death
The MISS Foundation is a 501 (c) 3, volunteer based organization committed to providing crisis support and long term aid to families after the death of a child from any cause. MISS also participates in legislative and advocacy issues, community engagement and volunteerism, and culturally competent, multidisciplinary, education opportunities.